19 Botti, Simona, Kristina Orfali, and Sheena Iyengar. 2010. “Tragic Choices: Autonomy and Emotional Responses to Medical Decision Making.” Journal of Consumer Research 36:337–352.
20 Bury, Michael R. 1982. “Chronic Illness as Biographical Disruption.” Sociology of Health & Illness 4(2):167–182.
21 Callahan, Daniel. 1999. “The Social Sciences and the Task of Bioethics.” Daedalus 128(4):275–294.
22 Capron, Alexander M. 1999. “What Contributions Have Social Science and the Law Made to the Development of Policy on Bioethics?” Daedalus 128(4):295–325.
23 Chambliss, Daniel. 1996. Beyond Caring: Hospitals, Nurses, and the Social Organization of Ethics. Chicago, IL: University of Chicago Press.
24 Charmaz, Kathy. 1991. Good Days, Bad Days: The Self in Chronic Illness and Time. New Brunswick, NJ: Rutgers University Press.
25 Charon, Rita and Martha Montello. 2002. Stories Matter. The Role of Narrative in Medical Ethics. New York: Routledge.
26 Cho, Mildred, Ryo Shohara, Anna Schissel, and Rennie Drummond. 2000. “Policies on Faculty Conflicts of Interest at US Universities.” Journal of American Medical Association (17): 2203–2208.
27 Churchill, Larry R. 1999. “Are We Professionals? A Critical Look at the Social Role of Bioethicists.” Daedalus 128(4):253–274.
28 Clark, Jack, Deborah A. Potter, and John B. McKinlay. 1991. “Bringing Social Structure Back into Clinical Decision Making.” Social Science & Medicine 32:853–866.
29 Cobbs v. Grant, 502 P. 2d 1 (Cal 1972).
30 Cockerham, William (ed.) 2001. The Blackwell Companion to Medical Sociology. Oxford: Blackwell.
31 Corrigan, Oona. 2003. “Empty Ethics: The Problem with Informed Consent.” Sociology of Health & Illness 25(7):768–792.
32 Cruzan v. Missouri Department of Health, 497 U.S. 261 (1990).
33 De Vries, Raymond. 2004. “How Can We Help? from ‘Sociology In’ Bioethics to ‘Sociology Of’ Bioethics.” Journal of Law, Medicine and Ethics 32(2):279–292.
34 De Vries, Raymond. 2017. “Regarding Bioethics: A Sociology of Morality.” Perspectives in Biology and Medicine 60(1):74–92.
35 De Vries, Raymond, Robert Dingwall, and Kristina Orfali. 2009. “The Moral Organization of the Professions: Bioethics in the United States and France.” Journal of Contemporary Sociology 57(4):555–579.
36 De Vries, Raymond and Carl P Forsberg. 2002. “What Do IRBs Look Like, What Kind of Support Do They Receive?” Accountability in Research 9:199–216.
37 De Vries, Raymond, Kerry A Ryan, Aimée Stancyk, Paul S Appelbaum, Laura Damschroder, David S Knopman, and Scott Y H Kim. 2013. “Public’s Approach to Surrogate Consent for Dementia Research: Cautious Pragmatism.” The American Journal of Geriatric Psychiatry 21(4):364–372.
38 De Vries, Raymond and Janatdan Subedi (eds.). 1998. Bioethics and Society: Constructing the Ethical Enterprise. Upper Saddle River, NJ: Prentice Hall.
39 De Vries, Raymond, Leigh Turner, Kristina Orfali, and Charles Bosk (eds.). 2007. The View from Here, Bioethics and the Social Sciences. Oxford: Blackwell.
40 Dresser, Rebecca. 2001. When Science Offers Salvation: Patient Advocacy and Research Ethics. New York: Oxford University Press.
41 Evans, John H. 2002. Playing God? Human Genetic Engineering and the Rationalization of Public Bioethical Debate. Chicago, IL: University of Chicago Press.
42 Evans, John H. 2014. The History and Future of Bioethics: A Sociological View. New York: Oxford.
43 Faden, Ruth R. 2004. “Bioethics: A Field in Transition.” Journal of Law, Medicine and Ethics 32(2):276–278.
44 Fassin, Eric. 2012. “Introduction. Sous La Bioéthique, La Bio-politique.” http://www.raison-publique.fr/article523.html
45 Feeley, Malcolm M. 1979. The Process Is the Punishment: Handling Cases in a Lower Criminal Court. New York: Russell Sage.
46 Feuillet-Liger, Brigitte and Kristina Orfali (eds.). 2018. The Reality of Human Dignity in Bioethics and Law: Comparative Perspectives. Dordrecht: Springer.
47 Feuillet-Liger, Brigitte, Kristina Orfali, and Thérèse Callus (eds.). 2013. Families and End of Life Treatment. An International Perspective. Paris: Bruylant.
48 Fischer, Jill A. 2009. Medical Research for Hire: The Political Economy of Pharmaceutical Clinical Trials. New Brunswick, NJ: Rutgers University Press.
49 Foucault, Michel. 1976. Volonté de savoir. Histoire de la sexualité. vol. 1, chapitre V, “Droit De Mort Et Pouvoir Sur La Vie.” Paris: Gallimard.
50 Fox, Renée C. 1959. Experiment Perilous: Physicians and Patients Facing the Unknown. Glencoe, IL: Free Press. mm.
51 Fox, Renée C and Judith Swazey. 1974. The Courage to Fail: A Social View of Organ Transplant and Dialysis. Chicago, IL: University of Chicago Press.
52 Fox, Renée C and Judith Swazey. 2005. “Examining American Bioethics: Its Problems and Prospects. Quo Vadis? Mapping the Future of Bioethics.” Cambridge Quarterly of Health Care Ethics 14:361–373.
53 Fox, Renée C and Judith Swazey. 2008. Observing Bioethics. New York: Oxford University Press.
54 Goldman, Jerry and Martin Katz. 1982. “Inconsistency and Institutional Review Boards.” Journal American Medical Association 248:197–202.
55 Goldstein, Adam, Pamela Frasier, Peter Curtis, Alfred Reid, and Nancy E. Kreher. 1996. “Consent Form Readability in University-Sponsored Research.” Journal of Family Practice 42:606–611.
56 Gray, Radford H. 1975. Human Subjects in Medical Experimentation: A Sociological Study of the Conduct and Regulation of Research. New York: Wiley.
57 Guillemin, Jeanne H and Lynda L Holmstrom. 1986. Mixed Blessings: Intensive Care for Newborns. New York: Oxford University Press.
58 Halpern, Sydney. 2001. “Constructing Moral Boundaries: Public Discourse on Human Experimentation in Twentieth-Century America.” Pp. 69–89 in Bioethics in Social Context, edited by Barry Hoffmaster. Philadelphia, PA: Temple University Press.
59 Hauschildt, Katrina and Raymond DeVries. 2019. “Reinforcing Medical Authority: Clinical Ethics Consultation and the Resolution of Conflicts in Treatment Decisions.” Sociology of Health & Illness 42(2):307–326.
60 Hedgecoe, Adam. 2004. “Critical Bioethics: Beyond the Social Science Critique of Applied Ethics.” Bioethics 18(2):120–143.
61 Heimer, Carol A and Lisa R Staffen. 1998. For the Sake of Children: The Social Organization of Responsibility in the Hospital and in the Home. Chicago, IL: University of Chicago Press.
62 Henderson, G. Michele Easter, Catherine Zimmer, Nancy King, Arlene Davis, Barbara Rothschild et al. 2006. “Therapeutic misconception in early phase gene transfer trials.” Social Science & Medicine 62(1):239–53.
63 Hoffmaster, Barry (ed.). 2001. Bioethics in Social Context. Philadelphia, PA: Temple University Press.
64 Horner, Claire, Andrew Childress, Sophia Fantus, and Janet Malek. 2020. “What the HEC-C? an Analysis of the Healthcare Ethics Consultant-Certified Program: One Year I.” The American Journal of Bioethics 20:3, 9–18.
65 Hughes, Everett C. 1958. Men and Their Work. Glencoe, IL: Free Press.
66 In re Quinlan, 70 NJ 10 (1976).
67 Jonsen, Albert R. 1998. The Birth of Bioethics. New York: Oxford University Press.
68 Kauffman,