My heart goes out to you at this painful, confusing and frightening time. Nothing prepares us in life for the shattering blow of a life-threatening diagnosis. Almost all of us live our lives feeling immortal – as if bad things only happen to other people. But, from time to time, we are pulled in on the fishing line of life and brought face to face with our mortality – and forced to face the completely fragile nature of life. The more perfect and settled our life has been, the harsher the blow and the more imperative it is that both you and those around you treat you with the utmost gentleness, care and sensitivity as you come to terms with what is happening to you. You will need time and very good support to find ways to make sense of the crisis and, most important of all, to bring all possible creative intelligence to bear in finding the most effective healthcare solutions for you.
My own understanding of both the pain and possibilities within the experience of cancer came from my intense relationship with the remarkable Penny Brohn, co-founder of the Bristol Cancer Help Centre. Penny was diagnosed with breast cancer at age 38, with three children aged under 10. Both of her parents had died within the previous two years, and her marriage was so shaky that, at the point of diagnosis, her world collapsed completely. But, after a few weeks of abject misery, grief and despair, the combination of her own native cunning and the immense unconditional love of her great friend Pat Pilkington enabled her to pick herself up, dust herself off, and find the complementary, alternative and self-help approaches that enabled her to turn a five-year prognosis of survival into 21 years of a glorious and adventurous life.
Her journey took her all over the world – from the alternative clinics of Dr Issles in Bavaria and Dr Contreras in Mexico to monasteries deep in Wales and mind – body medical centres in London. This journey also took her into the depths of her own psyche and spirit with counselling and spiritual healing, and towards the gentle restorative energy medicines of acupuncture, homoeopathy and craniosacral therapy. She learned how to nourish her body properly with healthy food, metabolic supplements and immune stimulants, and how to meet her emotional needs with the love of women friends instead of focusing only on the love of her husband. She lifted her spirit by becoming a writer, painter, mosaic artist and gardener, and fulfilled her life purpose by setting up the pioneering Bristol Cancer Help Centre, thereby changing the face of medicine for ever.
Penny was very frightened but she was also an extraordinarily brave person. She had no idea where to start and what would work. Every step of her journey was an exploration, a negotiation with herself, her carers and her medical team. The only guiding star she had on her journey was her profound feminine intuition and the counsel she received from those whom she called her ‘gentle giants’ – the doctors, nurses, therapists and healers who had also been brave enough to step outside of the rigid box of medical thinking in an attempt to understand the big questions: What role does an individual’s lifestyle have in the development of cancer? What are the person’s needs during the illness and its treatment? Most important of all, what power could a person bring to bear to affect the health of his or her body and the chances of recovery?
As a spiritual woman, Penny was also constantly aware of the power of prayer and the immense benefits that could be available through spiritual healing and seeking spiritual guidance.
Penny’s amazingly comprehensive view of the nature of illness and healing sparked a revolution in cancer care. At first, it was explosive, as doctors feared that alternative doctors and practitioners would harm patients, taking them away from potentially effective medical treatment while fleecing them financially. Later, during the 1980s and 1990s, a truce was declared as many practitioners positioned themselves and their approaches as being complementary to medicine rather than alternative. But since the late 1990s, a new medical movement has emerged, led by His Royal Highness The Prince of Wales and his Foundation for Integrated Health, to help pull down the walls dividing care for the body from care for the mind and spirit, and help remove the conflict for patients between choosing between orthodox, complementary or alternative medicines. The aim has been to foster a climate in which people with cancer and their carers can be helped to obtain the best of all worlds – individually tailored treatment to meet their needs at all the different stages of cancer and its treatment.
This is vital, as one thing is certain – your needs will change. Sometimes you will feel strong, independent and entirely in control through the use of your self-help approaches. At other times you may feel ill, vulnerable and tempted to become dependent on the professional help of others. This was another of Penny’s great teachings for her doctors – to recognize the changes in her state and needs so that they were able to perform a complicated but perfect tango with her as she explored her options, defined her needs, made her negotiations, and flowed between fear and certainty.
To help you make sense of your reactions, needs and choices, you will find three main types of information in the pages that follow. The first type is emotionally based to help you recognize your state, define your needs and determine the kind of support you will need before embarking upon your healing journey. The second type of information is descriptive, giving you an overview of the kinds of approaches available so that you can define your healthcare values, and make your own choices as to what approach, or blend of approaches, is right for you. These two levels of information are found in Part 1 of this volume. The third type of information is factual, and is contained in Part 2. Once you have defined your needs and values, and made your choices, this Directory will help you to find the best resources that you need.
My goal in writing this book has been to share with you my understanding of the emotional map of the cancer experience for both those with cancer and their carers, which has come as a result of more than 20 years of working with people with cancer. I have also wanted to convey the theory, practice and benefits of each dimension of the integrated medicine model. Finally, I have wanted to act like a truffle hound, rooting out the treasures buried within the immensely complex terrain of alternative, complementary and self-help approaches to cancer to guide you directly to what I believe works.
Many people with cancer have said to me that they felt like they had to get a PhD in the subject within six weeks of their diagnosis. They have had to learn about their disease, the treatments and all the possible alternatives in a very short period of time to make their choices. In many cases, the Internet made things worse as the array of options has become so mind-boggling. So, the intention of this Directory is to share with you the pearls of wisdom I have gained over many years of sorting the wheat from the chaff, learning from the experience of the 20,000 or so people I have worked with. These individuals, like Penny, have by trial and error found their own way to fight cancer and heal themselves effectively, and their hope and mine is that you will be able with this book to ‘cut to the chase’, and avoid weeks of research and worry. I hope that, in the pages of this book, you will find everything you need but, if you do not, then both I and my team of Health Creation Mentors are available for consultation to coach you through getting the best treatments, the best treatment outcomes and getting yourself fully established on the road to recovery. I am available personally to help you through my Bath clinic (tel: 01225 423333) and through my interactive Cancer Lifeline Kit and supportive Health Creation Mentor Service, with backup from my three Health Creation doctor partners (contact the Health Creation Helpline on 0845 009 3366).
Most important of all, please be reassured that there are people living today who have survived every single kind of cancer. It is clear that the ones who do best are those who truly face their situation, go through their feelings, and then set about taking a positive course of action to become proactive in their own defence.
My love and very best wishes go with you as you embark upon your road to recovery, and I hope that this Directory will guide you to many exciting and fulfilling sources of invaluable help. Meanwhile, please be aware that this is a living document. I would be extremely grateful for your feedback, input, ideas and corrections. All possible efforts have been made to make this Cancer Directory as comprehensive and accurate as possible, but your help in improving it further for future readers will be much appreciated.
Please send your ideas and feedback to:
Dr Rosy Daniel,
Health